Below are some useful links for researchers, healthcare providers and members of the public who are seeking further information about this project.
TPP SystmOne is a centrally-hosted clinical system that enables the sharing of electronic patient records between different healthcare providers, via sharing agreements. SystmOne is based around the TPP “one patient, once record” model. Clinicians see complete patient information at the point of care, wherever the patient presents. There are now over 30 million electronic patient records stored on SystmOne. TPP developed ResearchOne as a not-for-profit enterprise along with the University of Leeds so that SystmOne users could choose to enable their non-identifiable records information to be used in approved research.
University of Leeds
The University of Leeds is in the Russell Group of leading UK universities with a track record of commitment to outstanding research. The Yorkshire Centre for Health Informatics in the School of Medicine are internationally renowned for their expertise in investigating the use of electronic health records to enable high-quality, efficient healthcare research.
SystmOne National User Group
SNUG is elected by, and represents the views of, SystmOne users from across primary, secondary and social care. SNUG representatives bring the views of system users to ResearchOne in order to help drive evidence-based research into system developments that can support evidence-based practice.
Health and Social Care Information Centre Indicators
The HSCIC Indicator Portal has indicators regarding health and social care, for example, practice population sizes and emergency admission rates by diagnosis. This may be useful for calculating the cohort size required for research projects.
National Research Ethics Service
NRES, delivered by the Health Research Authority (HRA), promotes ethical research that protects the rights of participants and brings potential benefits to science and society. NRES Research Ethics Committees safeguard the safety and wellbeing of participants and examine whether research is ethical. The de-identified ResearchOne database was approved by the REC for use in health and social care research.
National Information Governance Board for Health and Social Care
The NIGB monitors and advises on information governance practice to ensure that legal requirements are met. It protects the way that people’s data is used, stored and shared within the NHS and social care. The NIGB provide advice regarding security protocols, data linkage and data de-identification for the ResearchOne project. Since April 2013 these responsibilities have moved to the HRA, under the guidance of the Confidentiality Advisory Group.